Texas Parent to Parent (TxP2P) understands that raising a child with disabilities, chronic health conditions, or special healthcare needs can be overwhelming. You’re not alone. TxP2P provides crucial support, information, and education for families like yours, connecting you with other parents who understand your journey. Sharing experiences is at the heart of what we do, and we’ve seen firsthand how powerful peer support can be for families.
We know that managing your child’s healthcare information can feel like a job in itself. That’s why TxP2P highlights valuable tools like the Care Notebook, an organizational resource designed specifically for parents navigating complex healthcare systems. This tool is particularly useful for keeping track of vital details regarding your child’s health, education, and transition into adulthood.
One excellent resource for accessing a Care Notebook and a wealth of related information is Navigate Life Texas. This website, available at www.navigatelifetexas.org en diagnosis-healthcare care-notebook, offers a comprehensive Care Notebook tool within its diagnosis and healthcare section. Navigate Life Texas is designed to empower Texas families with the information and support they need.
Beyond the Care Notebook, TxP2P offers a range of family-centered services and programs aimed at providing comprehensive support. We also want to introduce you to the concept of a Medical Home. It’s not a physical place, but a family-centered approach to primary care. Our Medical Home Toolkit, available on our website, explains how to establish a medical home for your child, ensuring coordinated and comprehensive care.
TxP2P collaborates with and recommends valuable online resources like Navigate Life Texas and Parent Companion. We believe these websites can be incredibly beneficial, especially for parents who are newly navigating the complexities of raising a child with special needs. We encourage you to explore these platforms, particularly the video resources they offer.
Remember, the TxP2P staff are parents too. We have personal experience raising children with disabilities and special healthcare needs. We are here to listen and help. Reach out to us at 866-896-6001 or 512-458-8600. Take advantage of the resources available, including the Care Notebook at www.navigatelifetexas.org en diagnosis-healthcare care-notebook, and let TxP2P support you on your family’s journey.
