Bruce Willis Diagnosis: Family Update on Frontotemporal Dementia

The family of Bruce Willis has shared an update regarding his health, expressing their deep gratitude for the overwhelming support and kindness received over the past ten months. Your compassion has meant the world to us, and because we know how much you love Bruce, we want to provide further information about his condition.

In Spring 2022, we announced Bruce Willis’s diagnosis of aphasia. Since then, his condition has progressed, and we have now received a more definitive diagnosis: frontotemporal dementia (FTD). The challenges with communication were indeed an early indicator, but unfortunately, they represent only one aspect of the difficulties Bruce is facing due to this disease. While receiving this news is undoubtedly painful, it brings a sense of relief to finally have a clearer understanding of what Bruce is experiencing.

Frontotemporal dementia is a devastating disease, often unknown to many, yet it can affect anyone. It is the most common form of dementia for individuals under 60, and due to the lengthy diagnostic process, FTD is likely more widespread than current figures suggest. Currently, there are no effective treatments for FTD, a stark reality we hope will change with increased research and awareness in the coming years. As Bruce’s condition advances, we sincerely hope that media attention will focus on shedding light on this critical disease that urgently needs greater awareness and research funding.

Bruce has always believed in the power of using his platform to help others and raise awareness about important issues, both publicly and privately. We know that if Bruce could communicate fully today, he would want to use this moment to bring global attention and foster a sense of connection with others who are also navigating this debilitating disease and its profound impact on individuals and families.

Our family is just one among many grappling with the challenges of FTD. We strongly encourage anyone affected by this condition to seek out the extensive resources and support available through the AFTD (Association for Frontotemporal Degeneration) (@theaftd, theaftd.org). For those fortunate enough not to have direct experience with FTD, we implore you to take the time to learn more about it and support AFTD’s vital mission in any way you can.

Bruce has always found joy in life and inspired those around him to do the same. Witnessing the outpouring of care and love directed back to him and to all of us has been deeply meaningful. We are profoundly touched by the affection you have shown our beloved husband, father, and friend during this challenging time. Your continued compassion, understanding, and respect will be invaluable as we support Bruce in living as full a life as possible.

  • Emma, Demi, Rumer, Scout, Tallulah, Mabel, and Evelyn

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