It can be overwhelming for parents to navigate the complexities of raising a child diagnosed with autism spectrum disorder (ASD). As diagnoses of autism spectrum disorder (ASD) become increasingly prevalent, more families are facing the unique challenges associated with supporting a child who might experience difficulties in communication, social interaction, and managing repetitive behaviors.
According to the Centers for Disease Control and Prevention (CDC), 1 in 44 children in the United States are identified with ASD. This represents a significant rise of approximately 240 percent since 2000. Statistics also indicate that boys are four times more likely to be diagnosed with autism than girls.
“The prevailing evidence suggests that the increase in autism diagnoses is largely attributed to advancements in screening and diagnostic practices, rather than an actual surge in autism prevalence within the population,” clarifies Dr. Jeremy Veenstra-VanderWeele, a leading national authority on ASD. Dr. Veenstra-VanderWeele serves as the director of the Division of Child & Adolescent Psychiatry at NewYork-Presbyterian Morgan Stanley Children’s Hospital, New York State Psychiatric Institute, and Columbia University.
Dr. Jeremy Veenstra-VanderWeele, Director of Child & Adolescent Psychiatry, providing expert advice on dealing with autism diagnosis.
The presentation of ASD is remarkably diverse, varying significantly in both type and severity. “Autism exists across a broad spectrum,” Dr. Veenstra-VanderWeele explains. “We see individuals with autism who are highly functional, as well as those who are nonverbal, and a full range of abilities in between.”
Dr. Veenstra-VanderWeele acknowledges the natural feelings of uncertainty and fear that parents experience upon learning of their child’s ASD diagnosis. However, he emphasizes a message of hope: “There is substantial reason for optimism. Research in autism is progressing rapidly, and we are witnessing improved outcomes through effective, early interventions. Our understanding of autism today is significantly more advanced than it was two decades ago, thanks to ongoing research and expert insights.”
Dr. Veenstra-VanderWeele offers the following essential guidance and practical tips to help parents cope with an autism diagnosis and become effective advocates for their children:
Embrace Hope and the Power of Intervention
It’s critical to maintain a hopeful outlook. Both behavioral and educational interventions are powerful tools that can significantly impact a child’s development and well-being. The field of autism research is dynamic, constantly evolving and uncovering new ways to support individuals with ASD.
Recognize Your Child’s Individuality
First and foremost, remember that your child is an individual. Their identity is not solely defined by their diagnosis. They are a unique person with their own set of strengths and challenges. The diagnosis of ASD doesn’t alter the fundamental child you know and love.
Cultivate a Robust Support Network
Building a strong support system is invaluable. Seek out individuals you trust who can provide emotional support for you personally, and also support you in your role as a parent of a child with autism. Acknowledge the inherent challenges and give yourself credit for every step you take.
Seek Credible Information and Community Resources
Be discerning about the information you encounter. You will likely come across conflicting and unsubstantiated claims. Prioritize credible sources and evidence-based resources within your community. Identify professionals you trust and organizations you believe in. Don’t hesitate to ask for assistance. While other parents’ experiences can be informative, remember that each child with ASD is unique.
Prioritize Shared Joy and Connection
Make time for activities that you and your child genuinely enjoy together. While learning opportunities are essential, nurturing shared enjoyment within the family is equally important for bonding and well-being.
Establish Achievable Goals
Set realistic, incremental goals for your child and collaboratively work towards achieving them. Focus on the immediate next steps rather than distant milestones. Celebrate small victories and adjust goals as needed.
Nurture Your Partnership
Dedicate time, even if it’s just a few moments, to connect with your partner. Focus on each other as individuals, separate from your role as parents. Listen to each other’s needs and perspectives as you navigate decisions regarding your child’s care and support.
Maintain Reasonable Behavioral Expectations
Have age-appropriate expectations for your child’s behavior. It’s important to apply consistent boundaries, similar to those you would establish for any child of the same age. For instance, behaviors like biting or climbing on furniture should be addressed. Avoid punishment; instead, interrupt undesirable behaviors calmly, be firm, redirect their attention, and offer alternative activities when necessary.
Leverage Strengths and Family Passions
Identify and build upon your child’s and your family’s strengths. Help your child discover activities they are passionate about and utilize those interests to foster skill development and create positive experiences. If your family has a shared love for music, sports, or travel, explore ways to incorporate your child’s interests within those areas.
For further information regarding ASD resources at NewYork-Presbyterian, please visit the Center for Autism and the Developing Brain.
Jeremy Veenstra-VanderWeele, M.D. is a distinguished expert in child and adolescent psychiatry. He holds the position of director of the Division of Child & Adolescent Psychiatry at NewYork-Presbyterian Morgan Stanley Children’s Hospital, New York State Psychiatric Institute, and Columbia University. Additionally, he is the Suzanne Crosby Murphy Professor of Developmental Neuropsychiatry at Columbia University Vagelos College of Physicians and Surgeons and a psychiatrist at the Center for Autism and the Developing Brain. This center represents a collaborative effort between NewYork-Presbyterian, Weill Cornell Medicine, and Columbia University Vagelos College of Physicians and Surgeons, in partnership with NEXT for AUTISM.
