Receiving a New Lupus Diagnosis can feel overwhelming. Beyond the immediate concerns about your health, there’s a lot to process. From deciding who to tell – family, friends, employer – to understanding how to live with lupus, it’s a significant life change. Know that you’re not alone as you navigate this new chapter.
It’s natural to have many questions at this stage. What kind of doctors specialize in lupus? What medications might be necessary? What can you expect in the coming days and months? What are the warning signs to watch out for? And crucially, where can you find reliable support?
A common piece of advice from those who have been living with lupus for years is to pause and take a breath. You are entering a community of support. While it’s important to learn and become informed, take it one step at a time.
Here’s some guidance and resources, inspired by insights from support groups, health educators, and individuals within the Lupus Foundation who are living with lupus themselves.
Building Your Lupus Care Team
Regular doctor’s visits and establishing the right healthcare are crucial aspects of living with lupus. Seek recommendations from your primary care physician or other healthcare professionals you trust. A strong and trusting doctor-patient relationship is essential for effectively managing lupus. Finding the right team might take some time and effort, but it’s vital to ensure you have a care team that prioritizes your well-being and specific needs in your journey with lupus.
